GCT Support is comprised of a group of passionate individuals from the Giant Cell Tumor (GCT) of the Bone community. We have identified a need for a central location to provide education and resources to our community. All of our resources are based on up-to-date scientific information for patients and caregivers, as well as the medical community. Rare diseases, including GCTs, are often misdiagnosed, misunderstood and are not widely supported by research funding. Awareness is a key factor in resolving these issues. GCT advocates were looking for a home for GCT patients where they can feel validated and receive information that may impact their care and quality of life. They turned to The Life Raft Group (LRG), a non-profit organization that supports patients with another rare disease, Gastrointestinal Stromal Tumor (GIST). The LRG has been a leader in the rare disease community for over 20 years. The LRG is providing guidance and collaboratively working with the GCT community helping them to establish programs and platforms. The Life Raft Group is a 501 (c)(3) non-profit organization (tax id: 82-0547746) providing support through information, education, and innovative research to patients with rare diseases. View our 990 Form here..
Our mission
The mission of GCT Support is to enhance treatment options and quality of life for GCT patients through patient-powered research, education, empowerment, and global advocacy efforts. TGCT Support is a program of the Life Raft Group. Learn more about The Life Raft Group
